Learn all about SPARCO reccomendations for the management of Sickle Cell Disease in Sub-Saharan Africa. Discover more here.

Learn all about Sickle Cell Disease and the pediatric to adult transition in care from Dr. Lydia Pecker, a sickle cell doctor for young adults practicing in Baltimore, Maryland. In this episode the following topics are covered: diagnosing sickle cell, detecting and managing complications, and the major treatments, including new drugs and bone marrow transplants. Discover it here.

Cheat Codes: A Sickle Cell Podcast, is led by expert hosts Dr. Ahmar Zaidi and Dr. Mike Callaghan. Cheat Codes also features interviews with leading experts, moments from major conferences, and contributions from people living with sickle cell. ARISE Project Scientific Coordinator Baba Inusa contributed to episode 2 called Hydroxyurea, Hemoglobin, and Dr. Baba Inusa from ASCAT 2019 

What led a 46 year old Haitian artist to being kicked out of the hospital in the dead of winter? What led him to joblessness and homelessness? Part of the answer was in his blood…but most of the answer is us. Watch the talk held at at TEDxDetroit here.

What shape are your cells? You might not spend a lot of time thinking about the bodies of these building blocks, but microscopically, small variations can have huge consequences. And while some adaptations change these shapes for the better, others can spark debilitating complications. Amber M. Yates dives into the science of the malignant sickle-cell mutation. Discover it here.

Here you can consult and download the useful material made available by the UK Forum on Haemoglobin Disorder.

Short courses provide opportunities to study specialised topics in a broad range of health and global health fields. LSHTM, one of the ARISE consortium partners, provides with useful and interesting short courses. More detailed information on the topics addressed by each course and the registration procedure here.

A training curriculum developed by the Johns Hopkins Berman Institute of Bioethics aimed to integrate the principles of paediatric palliative care into the care of individuals living with Sickle Cell Disease (discover more here).

Some videos on key aspects of Sickle Cell Disease management developed by Duke University (watch them here).

The Sickle Cell Disease Course developed within the ASH Benign Hematology Curriculum (BHC) is a series of free, web-based videos designed to supplement education in Sickle Cell Disease for fellows (learn more here).

Rethink Sickle Cell Disease publishes educational contents on Sickle Cell Disease Pathophysiology, vaso-occlusive crises in Sickle Cell Disease and their clinical and societal impact

STSTN is a haemoglobinopathy collaboration led by healthcare professionals, including consultants, nurses, psychologists and others, across different members in UK. It includes relevant information for Sickle Cell Disease patients

The American Society of Hematology (ASH) initiated an effort to develop clinical practice guidelines on Sickle Cell Disease (SCD) to identify best practices for the management of acute and chronic complications of SCD and ways to improve the quality of care for patients.

It is essential to provide updated treatment guidelines that reflect the newest evidence about the disease, ensuring the medical community can better treat SCD and people with SCD can make the best decisions for their care.

Here following the available guidelines:

• American Society of Hematology 2019 guidelines for sickle cell disease: cardiopulmonary and kidney disease
• American Society of Hematology 2020 guidelines for sickle cell disease: transfusion support
• American Society of Hematology 2020 guidelines for sickle cell disease: prevention, diagnosis, and treatment of cerebrovascular disease in children and adults
• American Society of Hematology 2020 guidelines for sickle cell disease: management of acute and chronic pain

You can discover more in the following infographics:

• The state-of-the-art methodology
• Understanding Sickle Cell Disease