The article “Newborn screening for sickle cell disease in Africa” has been published on the Lancet Haematology journal.It is focused on the newborn screening (NBS) for Sickle Cell Disease (SCD) just launched in Zambia.
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First two babies screened for SCD in Kaduna State – Nigeria
The first two babies have been screened for Sickle Cell Disease at the Special Care Baby Unit of Ahmadu Bello University Teaching Hospital – ABUTH Main hospital, Shika in Nigeria.
SAVE THE DATE – Sickle Cell Disease Newborn Screening programme in Zambia
We are glad to announce the launch of the Sickle Cell Disease (SCD) Newborn Screening (NBS) programme in Zambia that will be held on 21 April 2021 at 11:30 AM (South Africa time) at the Arthur Davison Children’ Hospital in Ndola.
MARAC Statement: Temporary Suspension of Clinical Trials
MARAC is aware of the announcement regarding the temporary suspension of bluebird bio clinical trials of LentiGlobin Gene Therapy for Sickle Cell Disease
Virtual Teaching Programme 2021 now available
Visit the Virtual Teaching Programme page on the ARISE website to discover more about the upcoming lectures and the registration procedure.
Sickle Cell Disease: Taking Care of Your Health
PRIME Education, a healthcare education and research company, presents Sickle Cell Disease: Taking Care of Your Health, a five-part video series that include useful resources for living healthy with Sickle Cell Disease.
ARISE and COVID-19: Our continued response
In response to the current pandemic, the ARISE team have highlighted the impact COVID-19 has on patients living with Sickle Cell.
ARISE newsletter: issue no 3 2020
Read the ARISE newsletter issue no 3 2020
Novartis’ Expert Advice on Sickle Cell Disease
Some useful suggestions were provided to help patients to prevent or to face complications such as the pulmonary ones.
ARISE project on air at Salama Radio 98.1FM!
Bola and Stephanie along with Linda Yari participated in the Salama Radio 98.1FM interview in Kafanchan to talk about the ARISE project in order to increase the awareness on the Sickle Cell Disease at the community level.
COVID-19 guidelines
Updated guidelines have been published by the UK Public Health Agencies.
ARISE Train the Trainer Workshop – Report
The ARISE team along with partner institutions organised the first train the trainer workshop in Abuja (Nigeria) in September 2019.
New Standards of Care for UK Children with Sickle Cell Disease
The Sickle Cell Society, the only national charity in the UK that supports and represents people affected by sickle cell disease, has recently published the 3rd edition of “Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care”.
Sickle Cell Disease: Give Blood, Save a Life
The Centers for Disease Control and Prevention posted a new podcast, “Sickle Cell Disease: Give Blood, Save a Life”.
Guidelines on Sickle Cell Disease (SCD)-Related Transfusion Support
The American Society of Hematology (ASH) released new clinical practice guidelines on Sickle Cell Disease (SCD)-Related Transfusion Support, published in the Society’s peer-reviewed journal Blood Advances.
PREgnancy Care Integrating translational science, Everywhere, the PRECISE Network
The PRECISE Network is a new and broadly-based group of research scientists and health advocates mainly based in the UK and Africa, but also including the World Health Organization.
FDA approves Voxelotor for Sickle Cell Disease
Sickle cell disease (SCD) is among the world’s most common serious inherited diseases and that worsens over time. Treatments are available that can prevent complications and lengthen the lives of those suffering from this disorder.
Clinical Practice Guidelines on Sickle Cell Disease
The 2019-2020 Clinical Practice Guidelines on...
Discovering ARISE Project: Interview to Fedele Bonifazi
Want to know more about the ARISE project? Look...
ARISE Newsletter no. 1/2019
Read the contents of the ARISE Newsletter no....
