EDUCATION & TRAINING
Education opportunities on Sickle Cell Disease
ARISE is providing courses on Sickle Cell Disease for health professionals, patients and their families, to raise awareness amongst policy makers and the community. Different educational options have been developed, some of them are available on this page. Relevant lectures/training developed by external institutions, are also linked below.
Educational training courses
NHS rolls out ‘life-changing’ treatment for thousands with sickle cell disease
Community training activities
Kaduna State Newborn Screening Programme
TIFLIX: the platform on Thalassaemia and Sickle Cell Disease
“Disorders in Haemostasis” teaching session
ARISE webinars on iron overload and MRI in SCD
Ethical Evaluation Form Training Session
ARISE Virtual Teaching Programme
Workshop – Train the trainer
ASCAT
COVID-19 updates
Webinar - COVID-19 And Sickle Cell Disease: The Current Scenario
Webinar - Paediatric multisystem inflammatory syndrome temporally associated with COVID-19 and Sickle Cell Disease –what is the link?
World Sickle Cell Day 2020 - Celebration Open Webinar
Webinar - Paediatric to adult transition care for patients with Sickle Cell Disease: a global perspective
Webinar - Newborn Sickle Cell Disease Screening
SCDAA’s 48th Annual National Convention 2020
Blood transfusions: what you need to know and do
Implementation Science
Other Educational Resources
Approximate model for online resource library for ARISE could be a hybrid of the CDC.gov webpages for sickle cell https://www.cdc.gov/ncbddd/sicklecell/index.html and the website for HRSA HIV/AIDS Bureau https://hab.hrsa.gov/publications . This might serve as a Library or Toolkit for the education/training activities in Work Packages 2, 4, 5, 7 because some material is core information that is good for educating families, counseling, training CHEW, and even training clinicians.
- Content stored online, has keywords or clustered in webpages to allow search for topics and for audiences
- PDF text https://www.cdc.gov/ncbddd/sicklecell/materials/factsheets.html https://www.cdc.gov/ncbddd/sicklecell/healthyliving.html https://www.cdc.gov/ncbddd/sicklecell/traits.html
- Pictures and infographics
- Videos? Podcasts?
- PowerPoint presentations
- https://targethiv.org/
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/part-f-aids-education-and-training-centers-aetc-program
- https://sickleemergency.duke.edu/educational-resources/short-presentations-online-learning
- http://www.bioethicsinstitute.org/research/projects-2/hope/sickle-cell-disease-facilitators-guide
- Clinical guidelines and Model programs for specific clinical scenarios – these can be presented in different ways but I really like the HIV/AIDS Bureau examples.
- https://hab.hrsa.gov/clinical-quality-management/clinical-care-guidelines-and-resources
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/spns-workforce-building
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/special-projects-national-significance-spns-program-initiative-products
- https://hab.hrsa.gov/sites/default/files/hab/Publications/careactionnewsletter/june2011.pdf
- https://hab.hrsa.gov/publications/library/2013-hiv-continuum-care-tennessee
- Clinician training video https://sickleemergency.duke.edu/educational-resources/videos
- Download modules of materials