2020 lectures:

• B. Inusa – Introduction to haemoglobinopathies: part 1, part 2 (lecture recording)
• R. Colombatti – Paediatric problems in Sickle Cell Disease (lecture recording)
• A. Campbell – Global pain burden (lecture recording)
• K. Anie – Management of SCD (lecture recording)
• F. French – Sickle Cell management in A&E (lecture recording)
• B. Inusa – Antibiotic prophilaxys in Sickle Cell Disease (lecture recording)
• A. Adekile – The Spleen in Sickle Cell Disease: Influence of Malaria (lecture recording)
• R. Kesse-Adu – Chronic Complications in sickle cell and their management in adult patients (lecture recording)
• C. Lederer – Introduction to Gene & Cell Therapy for Haemoglobinopathies (lecture recording)

2021 lectures:

• F. Kirkham – Stroke screening and Transcranial Doppler (TSD) in SCD (lecture recording)
• M. De Montalembert – Comprehensive management of SCD in children  (lecture recording)

2022 lectures:

• E. Oteng-Ntim – Sickle Cell Disease in pregnancy: when the miracle of childbirth becomes a matter of life and death
• B. Inusa – Acute management of SCD in emergency
• S. Babiker – Transition from Pediatrics to Adults
• K. Ominu-Evbota – Acute Management Of Sickle Cell Painful Crises in Children
• S. Padayachee – TCD Screening for children with Sickle Cell Disease 

Lectures in 2020:

• D. Darbari – Classification and management of acute and chronic pain in Sickle Cell Disease (lecture recording)
• J. Popoola – Renal Complications in Sickle Cell Disease (lecture recording)
• M. Treadwell – Topics in shared decision making (lecture recording)

Lectures in 2022:

• A. Anie Kofi –  Addressing the Challenge of Stigma in SCD

• M. Treadwell – Moving Patient Reported Outcomes into Sickle Cell Disease

• M. Treadwell – Shared Decision Making with Patients

• F. Kirkham – Prevention of Neurological Problems in SCD

2020 lectures:

• W. Atoyebi – SCD and pathology (lecture recording part 1, part 2)
• J. Elion – SCD and pathology: genetics of haemoglobinopathies (lecture recording)
• A. Kwabena-Asubonteng – Demonstration of the Ghana newborn screening application (lecture recording)
• A. Adam – Demonstration of Hb-Electrophoresis by Isoelectric focusing (IEF) method (IEF video demonstration)
• J. Elion – IEF vs HPLC (lecture recording)
• Case Studies: Haemoglobinopathies Including Newborn Screening – The Challenges and Discrepancies – session 1 slides, session 2 slides (Session 1 Agenda – Session 2 Agenda)

2021 lectures:

• W. Atoyebi, J. Elion and N. Anyanwu – Recent Diagnostic Advances in Newborn Screening (lecture recording)
  • ‘A review of current approaches across continents’ UK Laboratory Screening (W. Atoyebi)
  • Newborn Screening Point Of Care Testing (W. Atoyebi)
  • Recent diagnostic advances in Newborn screening of sickle cell disease (J. Elion)
  • Newborn screening in SCD: a review of current approaches across continents (J. Elion)
  • Newborn Screening Pathway (N. Anyanwu)

Lectures in 2020:

• N. Anyanwu – Screening pathways and breaking bad news (lecture recording)
• K. Ajamufua – Role of Community Sickle Cell Specialist Nurse/Genetic Counselling/New-born screening (lecture recording EN, HAUSA)

Lectures in 2022:

• K. Ajamufua – Role of community nurses in supporting patients

2020 lectures:

• S. Scott – Introduction to epidemiology (lecture recording)
• F.B. Piel – Epidemiology statistics on burden of disease (lecture recording)
• P. Milligan – Introduction to Statistics for epidemiology and public health (lecture recording)

2021 lectures:

• F. Piel – Designinig a population screening project
  

2022 lectures: 

• S. Scott – Introduction to Epidemiology

Lectures in 2020:

• L. Hsu – How can implementation science frameworks help newborn screening in african settings (lectures part 1, part 2, part 3 – lectures recordings part 1, part 2, part 3)
• B. Ojo – Community stakeholder engagement (lecture recording)
• L. Gwani – Policy maker engagement (Nigeria) – (lecture recording)
• S. Quirk – Stakeholder engagement (lecture recording)

Lectures in 2022:

• L.D. Gwani – Engagement with policy-makers. The role of Civili Societies
• E. Proctor – NHS Sickle Cell and Thalassaemia Screening (SCT) Programme
• B. Ojo – Patient Voice and Public Involvement in improving SCD Health Care
• L. Hsu – Implementation planning with ‘getting to outcomes’ can help underserved populations
• L. Hsu – Empowerment evaluation with “Getting To Outcomes” can help a project adapt to changing conditions 

2020 lectures:

• D. Darbari – How to write a research paper? (lecture recording)
• K. Anie – Psychological Research Themes in Sickle Cell Disease (lecture recording)

2021 lectures:

• S. Scott – Designing a research study (For all the ARISE members, for additional information about the lecture and the link at the recording please contact us at: arise@benzifoundation.org)
  

• A. Landi – Informed Consent form
• A. Didio – Assent form and informative material for minors
• L. Ruggieri – Clinical studies registries

Lectures recording available here.