EDUCATION & TRAINING
Webinar – Paediatric multisystem inflammatory syndrome temporally associated with COVID-19 and Sickle cell disease –what is the link?
Within the ARISE project in collaboration with the National Haemoglobinopathy Panel, the first webinar addressing recent issues raised about the co-existence of ‘Paediatric multisystem inflammatory syndrome temporally associated with COVID-19 and Sickle Cell Disease‘ was organised and was held on 15th June 2020. A multidisciplinary perspective was adopted and case-studies were discussed with top-leading experts in infectious diseases, rheumatology, cardiology, neurology and haematology. For the webinar CPD points were awarded.
Here following the webinar material.
Webinar Agenda
Speakers' presentations
The perspective of infectious diseases specialists
- J. Kenny: Paediatric Inflammatory Multisystem Syndrome temporally associated with SARS CoV 2: PIMS-TS
- A. Bamford – Paediatric Multisystem Inflammatory Syndrome Temporally Associated with SARS CoV 2: infectious diseases perspective
Case presentations
- J. Broad – A child with sickle cell and PIMS TS
- A. Leigh – NCL cases
Debate: The diagnosis of PIMS-TS is sustainable,and the treatment is not sustainable inSickle Cell Disease
- S. Chakravorty – Sickle cell disease and COVID-19
The diagnostic conundrum, Rheumatology perspectives
- V. Shivamurthy – PIMS-TS and Sickle cell disease Paediatric Rheumatology perspective
The role of pharmacy
- C. Jones – PIMS-TS
- Content stored online, has keywords or clustered in webpages to allow search for topics and for audiences
- PDF text https://www.cdc.gov/ncbddd/sicklecell/materials/factsheets.html https://www.cdc.gov/ncbddd/sicklecell/healthyliving.html https://www.cdc.gov/ncbddd/sicklecell/traits.html
- Pictures and infographics
- Videos? Podcasts?
- PowerPoint presentations
- https://targethiv.org/
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/part-f-aids-education-and-training-centers-aetc-program
- https://sickleemergency.duke.edu/educational-resources/short-presentations-online-learning
- http://www.bioethicsinstitute.org/research/projects-2/hope/sickle-cell-disease-facilitators-guide
- Clinical guidelines and Model programs for specific clinical scenarios – these can be presented in different ways but I really like the HIV/AIDS Bureau examples.
- https://hab.hrsa.gov/clinical-quality-management/clinical-care-guidelines-and-resources
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/spns-workforce-building
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/special-projects-national-significance-spns-program-initiative-products
- https://hab.hrsa.gov/sites/default/files/hab/Publications/careactionnewsletter/june2011.pdf
- https://hab.hrsa.gov/publications/library/2013-hiv-continuum-care-tennessee
- Clinician training video https://sickleemergency.duke.edu/educational-resources/videos
- Download modules of materials