EDUCATION & TRAINING
Workshop – Train the trainer
Programme and report
Session 1 - Welcome
- Gajere Gyawiya Jonathan – Structure of healthcare in Nigeria and new born screening
- Kolade Ernest – Recent studies in Africa – REACH & NoHARM
Session 2 - International collaboration
Session 3 - Counselling, sample collection and transportation
- Logistics including forms, sampling, demographics, transportation & storage – G. Bahago and G. Olanipekun
- N. Anyanwu – Confidentiality, breaking bad news and counselling
- W. Atoyebi- The UK National Haemoglobinopathy Registry and Dashboard
Session 4 - Information and Data Management
- A. Asubonteng – Management of Newborn Screening Data in Ghana
- R. O’Loughlin – Information governance and data collection to support screening
Session 5 - Comprehnsive care and follow-up care clinics
- E. David – Sickle Cell Disease: Routine Screening of Children including TCD
- Management protocols – F. Lawson and H. Ahmad
- O. Oniyangi – Primary Health Care – Initial assessment and counselling for Sickle Cell Disease
- S. Obaro – The Long Road to “ARISE” from Nigeria
- U. Nnebe-Agumadu – Recruiting Sickle Cell Patients….Pediatric sickle cell unit UATH
- B. Inusa – ARISE project
Session 6 - Essential skills
- A. Mande – Communication and dissemination plan for implementation of ARISE project in Nigeria 2019 – 2022
- N.D. Ifere – Sickle Cell Disease, the society and education
- R. Yalma – Retention Strategies For Life Course Studies of Sickle Cell Disease in Nigeria
- A. Hassan – Role and Responsibilities In Achieving Effective Team Work in the Laboratory
Session 7 - Laboratory staff
- O. Fakolujo – Principles of IEF for newborn screening /protocols
Approximate model for online resource library for ARISE could be a hybrid of the CDC.gov webpages for sickle cell https://www.cdc.gov/ncbddd/sicklecell/index.html and the website for HRSA HIV/AIDS Bureau https://hab.hrsa.gov/publications . This might serve as a Library or Toolkit for the education/training activities in Work Packages 2, 4, 5, 7 because some material is core information that is good for educating families, counseling, training CHEW, and even training clinicians.
- Content stored online, has keywords or clustered in webpages to allow search for topics and for audiences
- PDF text https://www.cdc.gov/ncbddd/sicklecell/materials/factsheets.html https://www.cdc.gov/ncbddd/sicklecell/healthyliving.html https://www.cdc.gov/ncbddd/sicklecell/traits.html
- Pictures and infographics
- Videos? Podcasts?
- PowerPoint presentations
- https://targethiv.org/
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/part-f-aids-education-and-training-centers-aetc-program
- https://sickleemergency.duke.edu/educational-resources/short-presentations-online-learning
- http://www.bioethicsinstitute.org/research/projects-2/hope/sickle-cell-disease-facilitators-guide
- Clinical guidelines and Model programs for specific clinical scenarios – these can be presented in different ways but I really like the HIV/AIDS Bureau examples.
- https://hab.hrsa.gov/clinical-quality-management/clinical-care-guidelines-and-resources
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/spns-workforce-building
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/special-projects-national-significance-spns-program-initiative-products
- https://hab.hrsa.gov/sites/default/files/hab/Publications/careactionnewsletter/june2011.pdf
- https://hab.hrsa.gov/publications/library/2013-hiv-continuum-care-tennessee
- Clinician training video https://sickleemergency.duke.edu/educational-resources/videos
- Download modules of materials