EDUCATION & TRAINING
Webinar – Newborn Sickle Cell Disease Screening
This ARISE webinar continues the SCD webinar series. It focused on newborn screening, touching on all aspects, from a blueprint for developing a service to comprehensive care of affected babies. It was especially informative for developing a new service in LMIC’s. For the webinar CPD points were awarded.
You can consult the webinar material here below:
Webinar Agenda
Speakers' presentations
- J. Ojodu – Introduction to Public Health Newborn Screening
- V. Odesina – Newborn Sickle Cell disease programm: pre analytical phase
- W. Atoyebi – Analytical: Principles of laboratory screening
- J. Ubaike – Post Analytical: Principles of good laboratory practice
- B. Inusa – Post Analytical: Comprehensive care for babies with SCD
Webinar recording
You can consult or download the video recording of the webinar here.
Approximate model for online resource library for ARISE could be a hybrid of the CDC.gov webpages for sickle cell https://www.cdc.gov/ncbddd/sicklecell/index.html and the website for HRSA HIV/AIDS Bureau https://hab.hrsa.gov/publications . This might serve as a Library or Toolkit for the education/training activities in Work Packages 2, 4, 5, 7 because some material is core information that is good for educating families, counseling, training CHEW, and even training clinicians.
- Content stored online, has keywords or clustered in webpages to allow search for topics and for audiences
- PDF text https://www.cdc.gov/ncbddd/sicklecell/materials/factsheets.html https://www.cdc.gov/ncbddd/sicklecell/healthyliving.html https://www.cdc.gov/ncbddd/sicklecell/traits.html
- Pictures and infographics
- Videos? Podcasts?
- PowerPoint presentations
- https://targethiv.org/
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/part-f-aids-education-and-training-centers-aetc-program
- https://sickleemergency.duke.edu/educational-resources/short-presentations-online-learning
- http://www.bioethicsinstitute.org/research/projects-2/hope/sickle-cell-disease-facilitators-guide
- Clinical guidelines and Model programs for specific clinical scenarios – these can be presented in different ways but I really like the HIV/AIDS Bureau examples.
- https://hab.hrsa.gov/clinical-quality-management/clinical-care-guidelines-and-resources
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/spns-workforce-building
- https://hab.hrsa.gov/about-ryan-white-hivaids-program/special-projects-national-significance-spns-program-initiative-products
- https://hab.hrsa.gov/sites/default/files/hab/Publications/careactionnewsletter/june2011.pdf
- https://hab.hrsa.gov/publications/library/2013-hiv-continuum-care-tennessee
- Clinician training video https://sickleemergency.duke.edu/educational-resources/videos
- Download modules of materials