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Save the date! New webinar launched by ARISE
We are pleased to invite you to join the webinar “Paediatric multisystem inflammatory syndrome temporally associated with COVID-19 and Sickle cell disease – what is the link?”, organised within the ARISE project in collaboration with the National Haemoglobinopathy Panel. It will be held on Monday June 15th, 2020 at 05:00 PM (UK time).
The 19th June is World Sickle Cell Day – a day of raising awareness!
World Sickle Cell Day is a United Nation’s...
ARISE and COVID-19: Our continued response
In response to the current pandemic, the ARISE team have highlighted the impact COVID-19 has on patients living with Sickle Cell.
COVID-19 and Sickle Cell Disease: the current scenario
ARISE presented its first webinar “COVID-19 and Sickle Cell Disease: the current scenario” that was held on the 19th May (Session 1) and the 28th May (Session 2). More than 100 registrations were reported and over 120 participants attended the webinar from different parts of the world also including people not involved in the ARISE project.
ARISE newsletter: issue no 3 2020
Read the ARISE newsletter issue no 3 2020
Save the date: COVID-19 and Sickle Cell Disease: the current scenario – session 2
The second session of the webinar, to be held on Thursday 28th May, 2020 at 04:00 PM (UK time), will be the occasion to discuss with some relevant experts in the field who will provide their experience in order to understand the impact of COVID-19 on the SCD population, drawing conclusions from both the US and Lebanon. The emotional impact of the disease and the current response of the community in the US will be addressed as well.
Save the date: COVID-19 and Sickle Cell Disease: the current scenario – session 1
We are pleased to invite you to join the webinar “COVID-19 and Sickle Cell Disease: the current scenario”, organised within the ARISE project. The first session of the webinar will be held on Tuesday 19th May, 2020 at 04:00 PM (UK time). Relevant experts in the field of the haemoglobinopathies will give their contribution to understand the impact of the COVID-19 on the Sickle Cell Disease population and to compare the current pandemic response from the UK, Italy and Ghana, outlining the lessons learnt.
Novartis’ Expert Advice on Sickle Cell Disease
Some useful suggestions were provided to help patients to prevent or to face complications such as the pulmonary ones.
ARISE project on air at Salama Radio 98.1FM!
Bola and Stephanie along with Linda Yari participated in the Salama Radio 98.1FM interview in Kafanchan to talk about the ARISE project in order to increase the awareness on the Sickle Cell Disease at the community level.
Paediatric to adult transition care for SCD patients
The review “Paediatric to adult transition care for patients with sickle cell disease: a global perspective” aims to provide a global overview of the transition care practice and the baseline recommendations that can be adapted to local needs.
COVID-19 guidelines
Updated guidelines have been published by the UK Public Health Agencies.
ARISE Train the Trainer Workshop – Report
The ARISE team along with partner institutions organised the first train the trainer workshop in Abuja (Nigeria) in September 2019.
New Standards of Care for UK Children with Sickle Cell Disease
The Sickle Cell Society, the only national charity in the UK that supports and represents people affected by sickle cell disease, has recently published the 3rd edition of “Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care”.
Sickle Cell Disease: Give Blood, Save a Life
The Centers for Disease Control and Prevention posted a new podcast, “Sickle Cell Disease: Give Blood, Save a Life”.
Guidelines on Sickle Cell Disease (SCD)-Related Transfusion Support
The American Society of Hematology (ASH) released new clinical practice guidelines on Sickle Cell Disease (SCD)-Related Transfusion Support, published in the Society’s peer-reviewed journal Blood Advances.
POSTPONED – Arise mid-term meeting
Due to the on-going concern about the outbreak of the Coronavirus (COVID-19), this event is postponed. The ARISE MTM will be an opportunity to engage in a fruitful and constructive dialogue between the ARISE consortium and the Research Executive Agency (REA), including also the seconded staff members.
POSTPONED – 4th Global Congress on Sickle Cell Disease
Due to the on-going concern about the outbreak of the Coronavirus (COVID-19), this event is postponed. The Global Sickle Cell Disease Network (GSCDN), a community of SCD clinicians, scientists and researchers, organises in collaboration with the French SCD Community, represented by Jacque Elion, the 4th Global Congress on Sickle Cell Disease on April 7- 9, 2020 at the UNESCO Headquarters in Paris.
PREgnancy Care Integrating translational science, Everywhere, the PRECISE Network
The PRECISE Network is a new and broadly-based group of research scientists and health advocates mainly based in the UK and Africa, but also including the World Health Organization.
International Pathology Day 2019
The Royal College of Pathologist hosted again this year the International Pathology Day, on November 13th, 2019, with the participation of people all over the world.
Save the date – Sickle Cell in Pregnancy and Childbirth
The study day “Sickle Cell in Pregnancy and Childbirth” will be held on the 29th February 2020 at the St. Thomas’ Hospital in London.
