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Bola Ojo
WP7 Leader
Director and co-founder- Sickle Cell Disease Cohort Research Foundation(SCORE). SCORE is part of the ARISE Initiative as a collaborator and has been part of the internationally recognised sickle cell and thalassaemia conference for global faculty and delegates (www.scorecharity.com) which attracts over 300 delegates.
Research Interest: Sickle Cell Disease- International development.
Involved in strategic planning, health policy, advocacy, patient empowerment, Implementation science research tools and community development programs. Project manager on the EU-UNDP funded Sickle Cell Cohort Study: A Sustainable Pilot Scheme and oversaw its implementation under the Joint Migration and Development Initiative.
She was involved in the Non-Communicable Diseases (NCD) Alliance and active in CVD prevention and control in Africa through the African Heart Network.
Her co-publications include “Neonatal Screening in Utilising Getting to Outcomes framework in SCD.”
Latest News & Events
Keep updated on all the initiatives and events of the ARISE project
Join the HELIOS Webinar Series and Advance Your Knowledge on Haemoglobinopathies
The ARISE Initiative is pleased to inform you about the webinar series on haemoglobinopathies organised by HELIOS, the European network dedicated to raising awareness on haemoglobinopathies (HBs) and improving access to expert knowledge. As part of its efforts to...
Participate in a Study on Sickle Cell Disease Management in Nigeria
ARISE is conducting a questionnaire-based study, with the aim to map and analyse the organisation of the healthcare centres managing SCD in in relation with accessibility and readiness of specific health technologies (i.e., blood transfusion service, Magnetic...
An interview with a Sickle cell disease patient living in Portugal
Living with a rare disease like sickle cell disease is not easy. We asked a Portuguese patient to tell us about his experience with this disease. Read his story.