Home / Governance / Fedele (Duccio) Bonifazi
Fedele (Duccio) Bonifazi
Project Coordinator and PMT Member
Biomedical Engineer, Post-Graduate Master Degree in Health Technology Assessment and Management. Gianni Benzi Foundation Vice-president and Head of the IT & Research laboratory, designing patient registries, platforms, databases and other tools to support research activities implementing innovation.
Person in charge for HTA-Thal, the Italian multiregional Thalassemia registry, collecting and storing clinical, economic and epidemiological data from ~ 2,000 Haemoglobinopathies patients in Italy.
Member of the HTA Working Group in the Regional Agency for Health and Social Care of Puglia (Italy).
Project manager in EU and national research projects (including the EU Networks of Excellence FP6 TEDDY and FP7 GRiP).
Latest News & Events
Keep updated on all the initiatives and events of the ARISE project
Join the HELIOS Webinar Series and Advance Your Knowledge on Haemoglobinopathies
The ARISE Initiative is pleased to inform you about the webinar series on haemoglobinopathies organised by HELIOS, the European network dedicated to raising awareness on haemoglobinopathies (HBs) and improving access to expert knowledge. As part of its efforts to...
Participate in a Study on Sickle Cell Disease Management in Nigeria
ARISE is conducting a questionnaire-based study, with the aim to map and analyse the organisation of the healthcare centres managing SCD in in relation with accessibility and readiness of specific health technologies (i.e., blood transfusion service, Magnetic...
An interview with a Sickle cell disease patient living in Portugal
Living with a rare disease like sickle cell disease is not easy. We asked a Portuguese patient to tell us about his experience with this disease. Read his story.